Helplessness

[Gramps]

Earlier this year my wife beat cancer for the 4th time, we thought life was good again.........about 3 weeks ago she started having vision issues. Got in ASAP to see the retina specialist. Bad news, she is going blind. Wet macular degeneration. It's just about like a death sentence, we might be able to slow it down but that's a maybe. Right eye is about 40% gone and the left is about 20%. doctor says it will not get better. We might be able to slow it down, that will will require a shot in each eye monthly. I can't fathom what she is feeling right now, I know I feel totally helpless. sometimes life is a bitch.

 

[PaPaG]

I am sorry to hear your wife is going through this, she has gone through enough for 3 lifetimes, there are breakthroughs all the time...Prayers are sent to you guys..

Here is an interesting read.
https://www.nvisioncenters.com/macular-degeneration/treatment-breakthroughs/

 

[LHC Kirby]

Sorry to hear......

 

[sirbob]

Sorry to hear about this - it’s hard on both of you, I’m sure.

I was inspired by somebody yesterday while at the hospital. He was caring for his obviously very sick wife who was so weak she was in a wheel chair to get around. Watching the love her gave her to comfort her while she was suffering modeled how a husband should act when these situations arise in our life.

May you both have the strength to carry on and enjoy the good things in life...

 

[RichL]

Wow. Enough is enough. Very sorry to hear and wish the best to you both.

 

[OLDRAAT]

Gramps,

Sorry life has dealt her and you another setback, prayers sent. I also am dealing currently with my wife's health issues. Take it one day at a time and stay positive is the only advice I can give.

 

[500bbc]

Earlier this year my wife beat cancer for the 4th time, we thought life was good again.........about 3 weeks ago she started having vision issues. Got in ASAP to see the retina specialist. Bad news, she is going blind. Wet macular degeneration. It's just about like a death sentence, we might be able to slow it down but that's a maybe. Right eye is about 40% gone and the left is about 20%. doctor says it will not get better. We might be able to slow it down, that will will require a shot in each eye monthly. I can't fathom what she is feeling right now, I know I feel totally helpless. sometimes life is a bitch.

 

[monkeyswrench]

I hope you and her are doing as best as you can. Been through some stuff with my wife's health, and my middle kid's. I know the helpless feeling, and it sucks. All you can do is do your best to help her out.
What I always thought made things tough, when my parents were sick, my kid or my wife, was wondering how they were sick and not me. After what I put my body through, I would do anything to switch places

 

[Deja_Vu]

Best wishes and prayers to your wife. I hope she can beat that one too. Who knows...

 

[Yellowboat]

I am very sorry to hear that. You may want to check out your local vision impaired charities. They often have resources/ contacts for both you and your wife. Things like where to find large print, readers, coping classes and etc

 

[musicFunsun]

So sorry. Like said, enough already!

 

[charlyox]

Gramps, so sorry to read this. That woman has been through hell already. I wish you both of you the best dealing with this latest dilemma.

 

[Kachina26]

I'm sure having you around makes it a little better, sorry to hear about this.

 

[Yellowboat]

I dug thru my old vi resources info.. you might want to call dsbvi they are in salt lake. They are part of the wsr agency.

I dated a blind women for a long time, so I have lots of contacts still in the vi1 community. Just wish she had not got into meth, shit went side ways fast.

 

[TomD]

Sorry to hear this. Prays and thoughts for you and yours.

 

[Gramps]

I dug thru my old vi resources info.. you might want to call dsbvi they are in salt lake. They are part of the wsr agency.

I dated a blind women for a long time, so I have lots of contacts still in the vi1 community. Just wish she had not got into meth, shit went side ways fast.

dsbvi???? who is that?

 

[DaytonaBabe]

Gosh, so sorry to read this... y'all will be in my prayers.

Sent from my SM-N975U using Tapatalk

 

[Rattle Can Lou]

Gramps....I have been dealing with eyesight loss for over 12 years..and I have taken 18 shots in each eye...my condition is similar, with leaking vessels behind my right and left eye...I lost my night driving privileges about three years ago. The drug they injected was macugen.(sp) and also a cheaper drug named evastin (sp)...they have held the progression back since 2002. The shots sound horrible to almost everybody...but honestly..it is painless..first shots and only the first shots provided a minor burning sensation for about 4 hours and after that is was easy...actually went back to work that day... They have come a long ways on this disease over the last 12 years or so...Please keep your chin up...sounds like early diagnosis and hopefully it will be very SLOW...

 

[Yellowboat]

dsbvi???? who is that?

Division of Services for the Blind and Visually Impaired

Administrative Office

(801) 323-4343

(800) 284-1823

Fax (801) 323-4396

250 N 1950 W, Suite B

Salt Lake City, UT 84116-7902



Ogden Vocational Rehabilitation Office

950 E 25th Street

Ogden, UT 84401

(801) 395-7032

Fax (801) 393-4373

Provo Vocational Rehabilitation Office

150 E Center Street, Suite 3300

Provo, UT 84606-3157

(801) 806-0955

(800) 662-6539

Fax (801) 377-1241



St. George Vocational Rehabilitation Office

965 East 700 South, Suite 202

St. George, UT 84790-4085

(435) 986-0055

(877) 315-0259


Straight copy and paste form my vi contact list.


I have a few more for Utah, but they are all Paralympic relayed. One of those things when you date a blind athlete that travels all over the us/ world you tend to make long lists of local resources

 

[Gramps]

Division of Services for the Blind and Visually Impaired

thank you.... St. George is 30 miles down the road

 

[HBCraig]

Sorry Gramps

My late mother was also a 4 time cancer survivor.

A shot in each eye monthly? Holy shit man.

 

[Dana757]

Sorry to hear this. My mother has the same condition.

 

[rivermobster]

Sorry to read this.

Second opinion done yet??

Kaiser just opened a brand new surgery center by me. I had my cataract surgery done there a few weeks ago, and it was painless and quick. Everything there was HIGH tech!!!

Maybe find out who has the latest and greatest equipment up by you? Could make a world of difference.

Good luck!!

 

[SixD9R]

Sorry to hear this news. Prayers for her.

 

[RVR SWPR]

No doubt the life you guys have created all these years together helped your wife thru the cancer.Your still together and ready to win again.Stay positive Gramps,your wife appreciates your effort.

 

[Waterjunky]

The wife had a disk in her neck ruined about 2.5 years ago. I know the helpless feeling..............

 

[RiverDave]

I am so sorry to read this Gramps.. please let us know if there is anything we can do to help.

 

[buck35]

Nothing to add that hasn't been said earlier,just be there for her and good luck to you and your wife moving forward.

 

[was thatguy]

Very sorry to hear this.

Debs mom has been getting shots in each eye for probably 5-6 years now.

 

[cole_skier]

Gramps my wife works with a retina specialist here in st George let me know if can do anything. Your in our prayers


Sent from my iPhone using Tapatalk

 

[WhatExit?]

Sorry to hear about this - it’s hard on both of you, I’m sure.

May you both have the strength to carry on and enjoy the good things in life...

I can't say it any better than sirbob did

 

[wallnutz]

Damn Gramps, the hits keep on coming. We will keep your wife and you in our thoughts. I am glad the cancer is still in remission.
My mother went and is still dealing with this. She was told about the same thing of totally losing her vision. She stayed with the same Dr. for too long in my opinion, I kept pushing her for a second or even a third opinion. After seeing a new Dr. he had just about the same prognosis, but he changed up the shot. I think he went to the generic of the drug the first Dr. was using. He said some people have a lot better outcome with it. This was four years ago and her vision is still about the same and she hasn't had a shot in over a year. Please keep us posted on the treatment.

 

[JD D05]

Sorry to read this Gramps

 

[outboardrick]

Very sorry to hear Gramps, life just isn't fair sometimes

 

[Familyties]

Call Dr Ron P, Gallemore MD, PHD @ the Retina Macdla Institute
South Bay
4201 Torrence blvd Suite 220
Torrence CA 90503
310 944-9393
I have seen some reversal in Macular vision problems with his patients while I was treated for Retina

 

[TITTIES AND BEER]

Sorry to hear of this Steve prayers for the Mrs. to get better

 

[Lucky Larry]

Sorry to hear that life is throwing another hurdle in your path. Obviously your wife is a fighter. Stay strong, stay positive. Prayers for you both.

“Lucky’s Wife”

 

[Go-Fly]

Everyone here stands with you. Prayers for you and your wife.

 

[Rondog4405]

Man..sorry to hear this gramps.. Praying it all gets better for her

 

[Uncle Dave]

awww shit man so sorry - health problem are the absolute worst.

 

[nuckingfuts]

Sending all the best vibes I can muster your way.

 

[Keymyster]

Sorry to hear Gramps. Wish her the best. I will keep her in my prayers.

 

[HNL2LHC]

Gramps....so sorry to hear of the next challenge that you and your wife are facing. I just got back home after 3 months of helping my wife navigate a brain tumor and I am exhausted and feel out of touch with what life used to be. I know that you are taking great care of your wife. Sounds like there are a few directions in options as you two move forward. I know you know it but be sure that you are getting the rest that you need. Prayers heading your way!!!!

 

[24 Sleekenforcer]

Praying for you and her . My mother-in-law has the same problem and gets shots once a month, at her last appointment they said the shots are working . Hang in there and keep your chin up.

 

[Bullet28]

Prayers sent.

 

[TPC]

Sux Gramps but I’m relieved she’s still with us.